A Transition Pilot Program for Adolescents With Sickle Cell Disease

Jane S. Hankins, Raymond Osarogiagbon, Patricia Adams-Graves, Laura McHugh, Vanessa Steele, Matthew P. Smeltzer, Sheila M. Anderson

Research output: Contribution to journalArticle

40 Citations (Scopus)

Abstract

Introduction: Transition from pediatric to adult care is challenging for adolescents with chronic illnesses, including those with sickle cell disease (SCD). We describe a pilot program created to facilitate transition from pediatric to adult care by helping adolescents with SCD identify an adult medical home. Methods: We investigated the feasibility of this program by evaluation of overall participation, satisfaction, and acceptance. A secondary objective was to compare the proportion of adolescents who fulfilled a first appointment with an adult hematologist among participants and nonparticipants. Results: During the first 18 months of the program, 83 adolescents were invited and 34 (41%) agreed to participate; 25 (74%) completed their first visit within 3 months after leaving the pediatric program, compared with 16 of 49 (33%) of nonparticipants (p = .0002). Overall, 41 of 83 adolescents (49%) completed an appointment with an adult SCD program, regardless of program participation, in contrast with 11 of 75 adolescents (15%) who did so during the 18 months before the program was created (p < .0001). Discussion: This transition pilot program was feasible, and most adolescent participants with SCD established an adult medical home.

Original languageEnglish (US)
JournalJournal of Pediatric Health Care
Volume26
Issue number6
DOIs
StatePublished - Nov 1 2012

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Sickle Cell Anemia
Transition to Adult Care
Patient-Centered Care
Appointments and Schedules
Program Evaluation
Chronic Disease
Pediatrics

All Science Journal Classification (ASJC) codes

  • Pediatrics, Perinatology, and Child Health

Cite this

Hankins, J. S., Osarogiagbon, R., Adams-Graves, P., McHugh, L., Steele, V., Smeltzer, M. P., & Anderson, S. M. (2012). A Transition Pilot Program for Adolescents With Sickle Cell Disease. Journal of Pediatric Health Care, 26(6). https://doi.org/10.1016/j.pedhc.2012.06.004

A Transition Pilot Program for Adolescents With Sickle Cell Disease. / Hankins, Jane S.; Osarogiagbon, Raymond; Adams-Graves, Patricia; McHugh, Laura; Steele, Vanessa; Smeltzer, Matthew P.; Anderson, Sheila M.

In: Journal of Pediatric Health Care, Vol. 26, No. 6, 01.11.2012.

Research output: Contribution to journalArticle

Hankins, JS, Osarogiagbon, R, Adams-Graves, P, McHugh, L, Steele, V, Smeltzer, MP & Anderson, SM 2012, 'A Transition Pilot Program for Adolescents With Sickle Cell Disease', Journal of Pediatric Health Care, vol. 26, no. 6. https://doi.org/10.1016/j.pedhc.2012.06.004
Hankins, Jane S. ; Osarogiagbon, Raymond ; Adams-Graves, Patricia ; McHugh, Laura ; Steele, Vanessa ; Smeltzer, Matthew P. ; Anderson, Sheila M. / A Transition Pilot Program for Adolescents With Sickle Cell Disease. In: Journal of Pediatric Health Care. 2012 ; Vol. 26, No. 6.
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