Challenges to the standardization of burn data collection: A call for common data elements for burn care

Jeffrey C. Schneider, Liang Chen, Laura C. Simko, Katherine N. Warren, Brian Phu Nguyen, Catherine R. Thorpe, James C. Jeng, William Hickerson, Lewis E. Kazis, Colleen M. Ryan

Research output: Contribution to journalArticle

2 Citations (Scopus)

Abstract

The use of common data elements (CDEs) is growing in medical research; CDEs have demonstrated benefit in maximizing the impact of existing research infrastructure and funding. However, the field of burn care does not have a standard set of CDEs. The objective of this study is to examine the extent of common data collected in current burn databases. This study examines the data dictionaries of six U.S. burn databases to ascertain the extent of common data. This was assessed from a quantitative and qualitative perspective. Thirty-two demographic and clinical data elements were examined. The number of databases that collect each data element was calculated. The data values for each data element were compared across the six databases for common terminology. Finally, the data prompts of the data elements were examined for common language and structure. Five (16%) of the 32 data elements are collected by all six burn databases; additionally, five data elements (16%) are present in only one database. Furthermore, there are considerable variations in data values and prompts used among the burn databases. Only one of the 32 data elements (age) contains the same data values across all databases. The burn databases examined show minimal evidence of common data. There is a need to develop CDEs and standardized coding to enhance interoperability of burn databases.

Original languageEnglish (US)
Pages (from-to)201-208
Number of pages8
JournalJournal of Burn Care and Research
Volume39
Issue number2
DOIs
StatePublished - Feb 20 2018

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Databases
Common Data Elements
Terminology
Biomedical Research
Language
Demography
Research

All Science Journal Classification (ASJC) codes

  • Surgery
  • Emergency Medicine
  • Rehabilitation

Cite this

Schneider, J. C., Chen, L., Simko, L. C., Warren, K. N., Nguyen, B. P., Thorpe, C. R., ... Ryan, C. M. (2018). Challenges to the standardization of burn data collection: A call for common data elements for burn care. Journal of Burn Care and Research, 39(2), 201-208. https://doi.org/10.1097/BCR.0000000000000567

Challenges to the standardization of burn data collection : A call for common data elements for burn care. / Schneider, Jeffrey C.; Chen, Liang; Simko, Laura C.; Warren, Katherine N.; Nguyen, Brian Phu; Thorpe, Catherine R.; Jeng, James C.; Hickerson, William; Kazis, Lewis E.; Ryan, Colleen M.

In: Journal of Burn Care and Research, Vol. 39, No. 2, 20.02.2018, p. 201-208.

Research output: Contribution to journalArticle

Schneider, JC, Chen, L, Simko, LC, Warren, KN, Nguyen, BP, Thorpe, CR, Jeng, JC, Hickerson, W, Kazis, LE & Ryan, CM 2018, 'Challenges to the standardization of burn data collection: A call for common data elements for burn care', Journal of Burn Care and Research, vol. 39, no. 2, pp. 201-208. https://doi.org/10.1097/BCR.0000000000000567
Schneider, Jeffrey C. ; Chen, Liang ; Simko, Laura C. ; Warren, Katherine N. ; Nguyen, Brian Phu ; Thorpe, Catherine R. ; Jeng, James C. ; Hickerson, William ; Kazis, Lewis E. ; Ryan, Colleen M. / Challenges to the standardization of burn data collection : A call for common data elements for burn care. In: Journal of Burn Care and Research. 2018 ; Vol. 39, No. 2. pp. 201-208.
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