Designing for impact

identifying stakeholder-driven interventions to support recovery after major cancer surgery

Carmit McMullen, Matthew Nielsen, Alison Firemark, Patricia Merino Price, Denise Nakatani, Jean Tuthill, Ruth McMyn, Anobel Odisho, Michael Meyers, David Shibata, Scott Gilbert

Research output: Contribution to journalArticle

Abstract

Purpose: Complex bladder and colorectal cancer surgeries are associated with significant patient morbidity, yet few resources exist to prepare patients for the high levels of distress and complications they may experience. After ethnographic research to identify design challenges, we held a user-centered design (UCD) workshop to begin to develop patient- and caregiver-centered interventions to support preparation for and recovery after complex cancer surgery. Methods: Concepts that emerged from brainstorming sessions were visually represented on storyboards and rated. Highly scored concepts were further developed in break-out prototyping sessions and then presented to the entire group for review in person and during subsequent webinars. We collected workshop products (worksheets, prototypes, and recordings) for analysis to identify opportunities for intervention. The workshop, held in late 2014, was attended by three colorectal/oncologic surgeons, three urologic surgeons, five ostomy nurses, one quality improvement leader, three patients, one caregiver, and three experienced UCD facilitators. Results: Three opportunity areas were identified: (1) enhanced patient education including tele-health and multi-media tools (available at hospitals/clinics or online in any setting), (2) personalized discharge assessment and care planning, and (3) integrated symptom monitoring and educational interventions. Stakeholders reached consensus that enhanced patient education was the most important direction for subsequent intervention development. Conclusions: We engaged diverse stakeholders in a participatory, UCD process and concluded that research and practice improvement should prioritize the development of educational interventions in the pre-operative period to set the groundwork for improving appropriate self-care during recovery from major colorectal and bladder cancer surgeries.

Original languageEnglish (US)
Pages (from-to)4067-4076
Number of pages10
JournalSupportive Care in Cancer
Volume26
Issue number12
DOIs
StatePublished - Dec 1 2018

Fingerprint

Patient Education
Education
Urinary Bladder Neoplasms
Caregivers
Colorectal Neoplasms
Neoplasms
Ostomy
Colorectal Surgery
Self Care
Quality Improvement
Research
Nurses
Morbidity
Health
Surgeons
Direction compound

All Science Journal Classification (ASJC) codes

  • Oncology

Cite this

McMullen, C., Nielsen, M., Firemark, A., Price, P. M., Nakatani, D., Tuthill, J., ... Gilbert, S. (2018). Designing for impact: identifying stakeholder-driven interventions to support recovery after major cancer surgery. Supportive Care in Cancer, 26(12), 4067-4076. https://doi.org/10.1007/s00520-018-4276-0

Designing for impact : identifying stakeholder-driven interventions to support recovery after major cancer surgery. / McMullen, Carmit; Nielsen, Matthew; Firemark, Alison; Price, Patricia Merino; Nakatani, Denise; Tuthill, Jean; McMyn, Ruth; Odisho, Anobel; Meyers, Michael; Shibata, David; Gilbert, Scott.

In: Supportive Care in Cancer, Vol. 26, No. 12, 01.12.2018, p. 4067-4076.

Research output: Contribution to journalArticle

McMullen, C, Nielsen, M, Firemark, A, Price, PM, Nakatani, D, Tuthill, J, McMyn, R, Odisho, A, Meyers, M, Shibata, D & Gilbert, S 2018, 'Designing for impact: identifying stakeholder-driven interventions to support recovery after major cancer surgery', Supportive Care in Cancer, vol. 26, no. 12, pp. 4067-4076. https://doi.org/10.1007/s00520-018-4276-0
McMullen, Carmit ; Nielsen, Matthew ; Firemark, Alison ; Price, Patricia Merino ; Nakatani, Denise ; Tuthill, Jean ; McMyn, Ruth ; Odisho, Anobel ; Meyers, Michael ; Shibata, David ; Gilbert, Scott. / Designing for impact : identifying stakeholder-driven interventions to support recovery after major cancer surgery. In: Supportive Care in Cancer. 2018 ; Vol. 26, No. 12. pp. 4067-4076.
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