Exploring parent-sibling communication in families of children with sickle cell disease

Joyce Graff, Jane S. Hankins, Belinda T. Hardy, Heather R. Hall, Ruth J. Roberts, Susan L. Neely-Barnes

Research output: Contribution to journalArticle

9 Citations (Scopus)

Abstract

Background: Communication within families of children with sickle cell disease is important yet has not been adequately investigated. Methods: Focus group interviews were conducted with parents of children with sickle cell disease to explore parent-sibling communication about sickle cell disease. Results: Communication was influenced by attributes and behaviors of the parent, the child with sickle cell disease, and the sibling; extended family, neighbors, friends, and church members or social networks; and available, accessible resources related to the child's health, child's school, and parent employment. Outcomes that influenced and were influenced by factors within and outside the parent-sibling dyad and nuclear family included parent satisfaction, parent roles, family intactness, and status attainment. Conclusions: These findings support previous research with African-American families and expand our views of the importance of educating parents, family members, and others about sickle cell disease. The findings suggest a need to explore sibling perception of this communication, parent and sibling perception of the impact of frequent hospitalizations and clinic visits on the sibling and family, and variations within families of children with sickle cell disease.

Original languageEnglish (US)
Pages (from-to)101-123
Number of pages23
JournalComprehensive Child and Adolescent Nursing
Volume33
Issue number2
DOIs
StatePublished - Jan 1 2010

Fingerprint

Sickle Cell Anemia
Siblings
Communication
Parents
Child Behavior
Ambulatory Care
Focus Groups
Nuclear Family
Social Support
African Americans
Hospitalization
Interviews
Research

All Science Journal Classification (ASJC) codes

  • Medicine(all)
  • Pediatrics

Cite this

Exploring parent-sibling communication in families of children with sickle cell disease. / Graff, Joyce; Hankins, Jane S.; Hardy, Belinda T.; Hall, Heather R.; Roberts, Ruth J.; Neely-Barnes, Susan L.

In: Comprehensive Child and Adolescent Nursing, Vol. 33, No. 2, 01.01.2010, p. 101-123.

Research output: Contribution to journalArticle

Graff, Joyce ; Hankins, Jane S. ; Hardy, Belinda T. ; Hall, Heather R. ; Roberts, Ruth J. ; Neely-Barnes, Susan L. / Exploring parent-sibling communication in families of children with sickle cell disease. In: Comprehensive Child and Adolescent Nursing. 2010 ; Vol. 33, No. 2. pp. 101-123.
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