POND4Kids

A global web-based database for pediatric hematology and oncology outcome evaluation and collaboration

Yuri Quintana, Aman N. Patel, Magada Arreola, Federico G. Antillon, Raul C. Ribeiro, Scott Howard

Research output: Contribution to journalArticle

11 Citations (Scopus)

Abstract

The Pediatric Oncology Network Database, (www.pond4kids.org, POND), is a secure, web-based, multilingual pediatric hematology/oncology database created for use in countries with limited resources to meet various clinical data management needs including cancer registration, delivery of protocol-based care, outcome evaluation, and assessment of psychosocial support programs. Established as a part of the International Outreach Program at St. Jude Children's Research Hospital in Memphis, Tennessee, POND serves as a tool for oncology units to store patient data for easy retrieval and analysis and to achieve uniform data collection to facilitate meaningful comparison of information among centers. Launched in 2003, POND now has 233 sites registered with over 1,000 users in 66 countries. However, adoption and usage of POND varies widely among sites. This paper reviews some of the challenges to developing a global collaborative clinical platform based on the experiences of developing POND. The paper also presents a case study of POND use in Guatemala, where the Guatemalan National Oncology Unit (UNOP) has developed extensive internal and external global collaborations using POND.

Original languageEnglish (US)
Pages (from-to)251-256
Number of pages6
JournalStudies in Health Technology and Informatics
Volume183
DOIs
StatePublished - Jan 1 2013
Externally publishedYes

Fingerprint

Pediatrics
Oncology
Hematology
Databases
Guatemala
Information Centers
Information Storage and Retrieval
Outcome Assessment (Health Care)
Information services
Research
Information management
Neoplasms

All Science Journal Classification (ASJC) codes

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

Cite this

POND4Kids : A global web-based database for pediatric hematology and oncology outcome evaluation and collaboration. / Quintana, Yuri; Patel, Aman N.; Arreola, Magada; Antillon, Federico G.; Ribeiro, Raul C.; Howard, Scott.

In: Studies in Health Technology and Informatics, Vol. 183, 01.01.2013, p. 251-256.

Research output: Contribution to journalArticle

Quintana, Yuri ; Patel, Aman N. ; Arreola, Magada ; Antillon, Federico G. ; Ribeiro, Raul C. ; Howard, Scott. / POND4Kids : A global web-based database for pediatric hematology and oncology outcome evaluation and collaboration. In: Studies in Health Technology and Informatics. 2013 ; Vol. 183. pp. 251-256.
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