Subjective burden and quality of life in family caregivers of patients with end stage renal disease.

Mona Wicks, E. J. Milstead, Donna Hathaway, M. Cetingok

Research output: Contribution to journalArticle

40 Citations (Scopus)

Abstract

OBJECTIVE: The purpose of this study was to determine the quality of life (QoL) and level of subjective burden reported by family caregivers of persons with ESRD and to examine the relationship between these variables. The influence of patient (gender), illness (dialysis and diabetes status), and caregiver (race, gender, employment status, relationship to patient, and self-rated health) factors on burden and QoL was also examined. DESIGN: An exploratory descriptive design was used. SAMPLE: The convenience sample consisted of 96 caregivers of 96 transplant candidates diagnosed with end-stage renal disease. Participants were recruited from a University transplant service located in the Mid-South. METHODS: Caregivers of patients attending pretransplant clinic evaluations were invited to participate in the study. Caregivers completed a demographic data form, the Caregiver Burden Interview, and General QoL measure. Patient demographic data and dialysis and diabetes status were retrieved from the patient health history database of an ongoing study conducted by our transplant research team. Data were analyzed using descriptive statistics, Spearman's correlation analysis, and the appropriate parametric and nonparametric tests of group differences. RESULTS: Caregivers, most of whom were women, reported good QoL and little to no burden. Caregiver QoL was significantly related to caregiver burden and caregiver self-rated health. Neither caregiver race, gender, relationship to the patient, nor patient gender significantly contributed to caregiver burden or caregiver QoL. Caregiver burden did not differ by dialysis type (CAPD, incenter hemodialysis, etc.) or employment category (full-time, part-time, etc.), however QoL differed by employment status. CONCLUSIONS: Findings document the linkages among burden, QoL, and self-rated health as well as illness factors, such as diabetes status. Knowledge about these relationships may facilitate the development of interventions that enhance patient and family outcomes.

Original languageEnglish (US)
JournalANNA journal / American Nephrology Nurses' Association
Volume24
Issue number5
StatePublished - Jan 1 1997

Fingerprint

Caregivers
Chronic Kidney Failure
Quality of Life
Dialysis
Health
Transplants
Demography
Continuous Ambulatory Peritoneal Dialysis
Renal Dialysis
Databases
Interviews

All Science Journal Classification (ASJC) codes

  • Medicine(all)

Cite this

@article{47455c2294ab49c29761093aa96def0c,
title = "Subjective burden and quality of life in family caregivers of patients with end stage renal disease.",
abstract = "OBJECTIVE: The purpose of this study was to determine the quality of life (QoL) and level of subjective burden reported by family caregivers of persons with ESRD and to examine the relationship between these variables. The influence of patient (gender), illness (dialysis and diabetes status), and caregiver (race, gender, employment status, relationship to patient, and self-rated health) factors on burden and QoL was also examined. DESIGN: An exploratory descriptive design was used. SAMPLE: The convenience sample consisted of 96 caregivers of 96 transplant candidates diagnosed with end-stage renal disease. Participants were recruited from a University transplant service located in the Mid-South. METHODS: Caregivers of patients attending pretransplant clinic evaluations were invited to participate in the study. Caregivers completed a demographic data form, the Caregiver Burden Interview, and General QoL measure. Patient demographic data and dialysis and diabetes status were retrieved from the patient health history database of an ongoing study conducted by our transplant research team. Data were analyzed using descriptive statistics, Spearman's correlation analysis, and the appropriate parametric and nonparametric tests of group differences. RESULTS: Caregivers, most of whom were women, reported good QoL and little to no burden. Caregiver QoL was significantly related to caregiver burden and caregiver self-rated health. Neither caregiver race, gender, relationship to the patient, nor patient gender significantly contributed to caregiver burden or caregiver QoL. Caregiver burden did not differ by dialysis type (CAPD, incenter hemodialysis, etc.) or employment category (full-time, part-time, etc.), however QoL differed by employment status. CONCLUSIONS: Findings document the linkages among burden, QoL, and self-rated health as well as illness factors, such as diabetes status. Knowledge about these relationships may facilitate the development of interventions that enhance patient and family outcomes.",
author = "Mona Wicks and Milstead, {E. J.} and Donna Hathaway and M. Cetingok",
year = "1997",
month = "1",
day = "1",
language = "English (US)",
volume = "24",
journal = "Nephrology Nursing Journal",
issn = "1526-744X",
publisher = "Jannetti Publications, Inc.",
number = "5",

}

TY - JOUR

T1 - Subjective burden and quality of life in family caregivers of patients with end stage renal disease.

AU - Wicks, Mona

AU - Milstead, E. J.

AU - Hathaway, Donna

AU - Cetingok, M.

PY - 1997/1/1

Y1 - 1997/1/1

N2 - OBJECTIVE: The purpose of this study was to determine the quality of life (QoL) and level of subjective burden reported by family caregivers of persons with ESRD and to examine the relationship between these variables. The influence of patient (gender), illness (dialysis and diabetes status), and caregiver (race, gender, employment status, relationship to patient, and self-rated health) factors on burden and QoL was also examined. DESIGN: An exploratory descriptive design was used. SAMPLE: The convenience sample consisted of 96 caregivers of 96 transplant candidates diagnosed with end-stage renal disease. Participants were recruited from a University transplant service located in the Mid-South. METHODS: Caregivers of patients attending pretransplant clinic evaluations were invited to participate in the study. Caregivers completed a demographic data form, the Caregiver Burden Interview, and General QoL measure. Patient demographic data and dialysis and diabetes status were retrieved from the patient health history database of an ongoing study conducted by our transplant research team. Data were analyzed using descriptive statistics, Spearman's correlation analysis, and the appropriate parametric and nonparametric tests of group differences. RESULTS: Caregivers, most of whom were women, reported good QoL and little to no burden. Caregiver QoL was significantly related to caregiver burden and caregiver self-rated health. Neither caregiver race, gender, relationship to the patient, nor patient gender significantly contributed to caregiver burden or caregiver QoL. Caregiver burden did not differ by dialysis type (CAPD, incenter hemodialysis, etc.) or employment category (full-time, part-time, etc.), however QoL differed by employment status. CONCLUSIONS: Findings document the linkages among burden, QoL, and self-rated health as well as illness factors, such as diabetes status. Knowledge about these relationships may facilitate the development of interventions that enhance patient and family outcomes.

AB - OBJECTIVE: The purpose of this study was to determine the quality of life (QoL) and level of subjective burden reported by family caregivers of persons with ESRD and to examine the relationship between these variables. The influence of patient (gender), illness (dialysis and diabetes status), and caregiver (race, gender, employment status, relationship to patient, and self-rated health) factors on burden and QoL was also examined. DESIGN: An exploratory descriptive design was used. SAMPLE: The convenience sample consisted of 96 caregivers of 96 transplant candidates diagnosed with end-stage renal disease. Participants were recruited from a University transplant service located in the Mid-South. METHODS: Caregivers of patients attending pretransplant clinic evaluations were invited to participate in the study. Caregivers completed a demographic data form, the Caregiver Burden Interview, and General QoL measure. Patient demographic data and dialysis and diabetes status were retrieved from the patient health history database of an ongoing study conducted by our transplant research team. Data were analyzed using descriptive statistics, Spearman's correlation analysis, and the appropriate parametric and nonparametric tests of group differences. RESULTS: Caregivers, most of whom were women, reported good QoL and little to no burden. Caregiver QoL was significantly related to caregiver burden and caregiver self-rated health. Neither caregiver race, gender, relationship to the patient, nor patient gender significantly contributed to caregiver burden or caregiver QoL. Caregiver burden did not differ by dialysis type (CAPD, incenter hemodialysis, etc.) or employment category (full-time, part-time, etc.), however QoL differed by employment status. CONCLUSIONS: Findings document the linkages among burden, QoL, and self-rated health as well as illness factors, such as diabetes status. Knowledge about these relationships may facilitate the development of interventions that enhance patient and family outcomes.

UR - http://www.scopus.com/inward/record.url?scp=0031256022&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=0031256022&partnerID=8YFLogxK

M3 - Article

C2 - 9392735

AN - SCOPUS:0031256022

VL - 24

JO - Nephrology Nursing Journal

JF - Nephrology Nursing Journal

SN - 1526-744X

IS - 5

ER -